Hollywood actor Colin Farrell completed the Irish Life Dublin Marathon in support of Debra Ireland, a charity close to his heart. Farrell, known for his role in The Penguin, joined over 22,000 runners at the event, running alongside longtime friend Emma Fogarty, who lives with epidermolysis bullosa (EB), a rare and painful skin condition.
Crossing the finish line with Fogarty, Farrell said it was “nothing compared to the pain she endures daily.” He met Fogarty, who uses a wheelchair, at the last 2.5 miles, pushing her through the final stretch in a memorable finish.
Supporting “Butterfly Skin” Condition and a Milestone Birthday
Fogarty’s condition, EB, often called “butterfly skin,” is a severe genetic disorder affecting the skin. It causes the skin to blister and tear with minimal contact, leaving individuals vulnerable to painful wounds. With limited treatment options, many diagnosed have a life expectancy only into their 30s. Farrell, reflecting on this, called her strength “legendary,” as she celebrated her 40th birthday—an age few with her condition reach.
This marathon effort wasn’t just about completing the race; it was about raising awareness and funds. Farrell and Fogarty initially set a fundraising goal of 400,000 euros but soon raised it to 1 million euros after support poured in, with donations reaching nearly 679,000 euros as of the day before the race. For Fogarty, each kilometer represented a decade of her life, making it a symbolic journey as well as a personal victory.
Colin Farrell’s Advocacy and New Charity Work
Beyond his commitment to Debra Ireland, Farrell is actively involved in broader charitable causes. Earlier this year, he founded the Colin Farrell Foundation, inspired by his son, who has Angelman Syndrome, a rare neuro-genetic disorder. Launched in August, this organization advocates for families with adult children who have intellectual disabilities, focusing on educational resources and support.
Reflecting on his bond with Fogarty, whom he has known for 16 years, Farrell mentioned the privilege of sharing the last few kilometers with her during an interview with Seth Meyers. “I’m slowing down for her,” he shared, explaining his respect for her courage and the pain she endures daily.
The Bigger Picture: Supporting Rare Disease Awareness and Research
Debra Ireland, the organization Farrell and Fogarty supported during the marathon, provides critical support for those affected by EB. The charity not only funds research but also works to improve quality of life for patients. Farrell’s involvement has shone a spotlight on the challenges faced by people living with rare conditions, while encouraging the public to contribute to life-changing research.
Colin Farrell’s journey in the Dublin Marathon underscores his dedication to making a difference, both in his friend’s life and the lives of many affected by EB and similar conditions.
